Joanna Burgess Discovers Her Love For Nursing

Joanna played "hospital" as a child and the interest in helping others never left her.

Joanna played “hospital” as a child and the interest in helping others never left her.

Editor’s Note: This is the story of Joanna Burgess’s amazing and inspirational life.  Joanna originally submitted the following story to be published in a major national magazine, but the magazine elected not to publish it, however their loss is our gain.  Joanna Burgess is a nurse, a cancer survivor, a wife and the 2011 Great Comebacks® South Region Award Recipient and you can find out more about Joanna Burgess by clicking here. Part 3 of a 5 part series – originally published on the Courage to Shine website.

My mother’s gifts to me were very different than my father’s. Like so many people who come face to face with a terrifying medical diagnosis, she was terribly afraid of my ostomy and my burns. Because of this fear, and my father’s willingness to bear that burden for her, she was actually better able to see me beyond my illness. Her distance from my wounds allowed her to see my greatness without any limitations. Together we would get lost in a world of great imagination, storytelling, dance, creativity, music and art. This gave me a freedom to joyfully explore and embrace my life.
My mother said when I was born, she saw and felt joy, so she chose Joy for my middle name. She would make certain that cancer would not erase my joy. Dancing on that footbridge in my little red shoes – anyone could see that she was succeeding. When I was about 8, my mother and I created a small hospital in our basement. My little doll beds were lined up into two rows. We made IVs from empty drink bottles and tubing I found in my father’s workshop.  Some of the beds had oxygen tents made from plastic wrap. All of my stuffed animals had their own charts where I recorded their vital signs. My mother and I made up names of diseases that we put on empty pill bottles. I immersed myself into this world we had created in the basement and all I wanted to think about was becoming a nurse. As I grew older my mother worked out a way for me to change my clothes without revealing my ostomy and bag. She then encouraged me to go to slumber parties. She encouraged me to learn to play the piano (really a must for a minister’s daughter) and to play the flute in the concert band and even the marching band. And when I was chosen for the lead in my junior high school play, she helped me learn my lines. These many small accomplishments established in me a foundation for the self confidence I would need later on in my life.

In that little homemade basement hospital, a seed was sown that in 1981 would come to fruition when I was accepted into nursing school at West Virginia Wesleyan College.  I completed my BSN in 1985. My first nursing position was at Duke Hospital in the Department of Pediatrics.  It was then that I obtained my medical records from Boston Childrens and first saw the word “rhabdomyosarcoma” as my diagnosis. This “rare cancer,” as I had always heard it referred to, had a name! For the first time I felt a personal connection to this particular cancer and in an odd way felt as if I had discovered a treasure buried deep in a pile of medical records. I had wanted to know this cancer and I had needed it to have a name – and now it did. I wanted to better understand how it had become a part of me and how it had affected my life. I stood transfixed, holding those papers as I began to appreciate what I had survived.

Joanna's first nursing job was at Duke Hospital. Photo source.

Joanna’s first nursing job was at Duke Hospital. Photo source.

During my first year of nursing I had the opportunity to work with a three year old boy who had been newly diagnosed with rhabdomyosarcoma. He was facing many of the same things that I faced -chemotherapy, radiation therapy and a urostomy. His parents, although both in the medical field, were nonetheless devastated by the diagnosis. Like my own parents, they too were fearful of the diagnosis and fearful of their son having a urostomy, believing that it would change his personality and limit his opportunities. A good friend encouraged me to share my story with them. I had never before shared this part of my life with anyone beyond my family and close friends. But seeing this family’s daily devastation moved me. I walked into their room, a “normal looking” nurse, and walked out with a lifelong bond and connection. We remain in contact to this day sharing letters and stories and being a support for each other. They have given me insight into what my parents must have faced and I have offered them hope and guidance along their own journey.

Next: Joanna Burgess Practices Nursing In Honduras And Learns To Fully Appreciate Her Life

© Copyright 2012 Joanna J. Burgess

Addition links of Joanna Burgess to view:

2011 Great Comebacks® South Region Award Recipient and you can find out more about Great Comebacks® and Joanna Burgess at  http://www.greatcomebacks.com/us/stories/Joanna-Burgess.shtml

Sarcoma Alliance Cares for Children and Young Adults – News Release about Joanna Burgess: http://www.prweb.com/releases/2011/9/prweb8834724.htm

If you would like to contact Joanna Burgess please do so by sending her an e-mail to contact@courage-to-shine.org and we will forward it to Joanna.

Misty Blue Foster Took a Giant Step Backwards to Reach Her Dream but Stayed Strong

Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain and push their bodies and minds to the limits, and therefore win. Such is the case of Misty Blue Foster, who at a very young age set her sights on being a nurse, although physically and financially, she appeared to have no way to reach that goal. Part 4 of a 5-part series.

Misty hit difficult roadblocks while in school, but she did not give up.

Misty hit difficult roadblocks while in school, but she did not give up.

I decided after becoming a practical nurse that my life would be better after a four-year nursing degree and eventually a master’s degree. However, I had a major setback because of my financial needs. I couldn’t afford to go to a a four-year nursing school initally, but I could afford a private two-year school with loans and scholarships. Right now, I’m enrolled at the College of San Mateo, an accredited two-year college. I’m taking the prerequisites to be able to get into the RN program.

Here’s what happened–When I applied for my RN program, the school credit I’d received where I got my two-year nursing degree wasn’t transferable. The courses I’d taken were accredited for me to get a licensed nursing degree but not accredited by colleges and universities to count as the first two years of work for a four-year nursing degree. I had to retake all of the courses that I already had passed as prerequisites. I was somewhat devastated because I paid a lot of money, gone to school to become a licensed nurse, assumed I’d be able to go two more years and get a bachelor’s degree, and then discovered that I couldn’t. Now I’m taking and paying for two more years of classes that I’ve already passed. That’s the reason I am still working and going to school.

However, I still wanted to go back to school. My goal always has been to get a BSN degree, so this hurdle is just one more I needed to overcome. I couldn’t get my BSN degree if I got upset and angry and refused to do what was required. As soon as I got the word that I had to retake all those courses, I started. I’m still strong, and at 26 years old, I’m still young.

I don’t know how my medical condition will progress. If I wait until I’m older, I may not be able to handle working and going to school full-time. I can do it at my current age. I’ve had a lot of difficult roadblocks while growing up, working and going to school, but I always remember what my mother told me when I was a child. Even though she had drug and alcohol problems, she made sure to let me know that I always need to make the right choices. She also helped me learn to keep God in my life because she was not going to live long due to her addictions. I have always remembered this, so I pray to Him and ask for strength and help to make good decisions for my life. It is also beneficial to receive support from friends and role models.

Misty Looks for Role Models to Encourage her Through Difficult and Stressful Times

As I grew older, I looked for role models. I had a friend who was a social worker, another friend who was a police officer and a friend who was a nurse. I looked up to them because they gave me guidance and helped me make good choices. They taught me to stay out of trouble and to keep focused on my goal, regardless of what happens. With my faith and mentors, I had amazing supporters who always encouraged me.

When I was younger, I called the police a few times due to the domestic violence in my foster home. A certain police officer responded a few times, and we became friends. He checked on me to see how I was doing and what kind of grades I was making in school. He taught me how to drive and checked on me after I got out of foster care and had surgery. I also met my social worker, Tim, when I went to the county offices after I turned 18, and we also became friends. Lastly, Petie was a nurse at the hospital. She was always very nice and cared about me. She and her husband have pretty much adopted me now that she is retired.

Misty has traveled to several countries, including Australia thanks to Thomas Exler.

Misty has traveled to several countries, including Australia thanks to Tom Exler.

When I was in high school, I researched my conditions, because I didn’t know much about them. I came across a website on bladder exstrophy and contacted Tom Exler. I told him about my disability, and he explained to me that he had the same problem. At the time, he was the vice president of the Association for the Bladder Exstrophy Community, and today he’s the president. I told Tom about my difficult foster home life. I felt comfortable opening up to him.

We became close friends. He’s one of my mentors and supports me. He’s taken me to Iceland, Australia and England in the last few years, where I’ve spoken at conferences to people with Exstrophy, bowel, bladder, and neurological problems, and spina bifida. Tom is like the big brother I never had.

Tom invited me to Pennsylvania to the Association for the Bladder Exstrophy Community Conference. He asked a few of the conference attendees to speak to the audience about his or her life story. It was my first time speaking in public. I shared stories from my difficult childhood and told them I was a nurse. I was extremely nervous that no one would be interested, but when I finished, everyone clapped and really enjoyed my presentation. 

Misty shared her story to inspire others.

Misty shared her story to inspire others.

Shortly after the conference, Tom invited me to go to Australia. We met people with exstrophy. I even gave my first speech as a licensed nurse to talk about my medical problems. I found out that many people were not as informed as I was about their conditions. This conference was an eye opener for me, because I learned about other people’s situations and problems. I really enjoyed it!

This year we went to England to Breakaway, a camp for children with disabilities. There were a few kids who had exstrophy and urinary diversions. It was also an eye opening experience and I was grateful to help those children. The same time that we were at the camp in England, the royal wedding took place, which I thought was really neat.

Tom went to another conference without me due to surgery. A mutual friend, Doug Krietz, recorded my talk at his studio so Tom could present it to the conference. We put it on YouTube, so that people can see that they can do anything. My video has thousands of hits from all over the world! People were so excited and told Tom and me that they learned alot. I really didn’t expect that type of recognition, so I was really surprised at how many people were interested in my story. The video can be viewed by typing in my name on YouTube.

Tom Exler has been a tremendous mentor who has encouraged me to share my story and hopefully help others. I think role models are essential whether you’re disabled or not. Mentors love you, care about you and want you to be successful. Mentors push you beyond your limits. My mentors have helped me reach my goals. Every time I’ve gotten knocked down in life, they have picked me up and encouraged me to keep going forward. I’m hoping to finish my nursing prerequisites within a year and then get my RN degree within another year. I’m within two years of getting an RN degree. One of the biggest reasons I’m able to carry on is that I got married 5-years ago, and my husband is a major source of encouragement and support to me.

Next: When Love Called, Misty Blue Foster Was Absolutely Turned Off

 About the Author: For the last 12 years, John E. Phillips of Vestavia, Alabama, has been a professional blogger for major companies, corporations and tourism associations throughout the nation. During his 24 years as Outdoor Editor for “The Birmingham Post-Herald” newspaper, he published more than 7,000 newspaper columns and sold more than 100,000 of his photos to newspapers, magazines and internet sites. He also hosted a radio show that was syndicated at 27 radio stations; created, wrote and sold a syndicated newspaper column that ran in 38 newspapers for more than a decade; and wrote and sold more than 30 books. Learn more at http://www.nighthawkpublications.com

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